Several years ago, I was teaching a lesson in my Sunday School class. After class, one of my ladies came to me and said, “I think you can move more than you think.” I said, “Really?! What makes you think that?” She said, “Because when you were teaching, your toes were moving.” I laughed and said, “Yeah, you ought to see my legs move at times!” I tried to explain…as I have had too many times – that I have no control over my movements at times. The whole conversation really embarrassed me as it was the first time anyone had seen my spasms.
That lady was totally clueless about spasms. Her understanding, like SO many people, is that if they see something on you moving – that is supposed to be paralyzed – that you are either 1) Lying, 2) Not trying hard enough or 3) You have been healed! All three are wrong. They don’t have a clue about spasms!
Spasms are movements that we do NOT have control over. Toes jumping, legs sticking straight out, our backs bowing and throwing us, our hands or arms shaking, or our whole bodies violently throwing us around – are all out of our control. We learn how to manage spasms, but we cannot get rid of them, nor do we have control over them. At times, we can trigger our spasms to help us transfer, put our clothes on easier, keep our muscles from atrophying completely away and other things that we learn along the way to help us along the way. I can bow my back and trigger a spasm (like you will see in the video) and I am in control of causing…or triggering…that spasm. But, I am in zero control of my legs. Spasms are extremely strong at times or barely noticeable. At times they are painful, embarrassing and can make life quite miserable. It all depends on a lot of various things. Spasms have always blown my mind. How can parts of my body not do anything I command them to do, and at other times my body does what I do NOT want it to do? That is the mystery of spasms.
This video gets very raw for me! I have never shown so many of my spasms in public. In this video, I am still in bed in my jammies, have a bed head, look awful, don’t feel great, and my body is fighting me. But….if this helps you to learn and not say something stupid or embarrassing to someone with a spinal cord injury, then it will have served its purpose.
Thank you for caring and sharing!!
Video 4 – Temperature Control