Site icon Alicia Reagan

Why I Needed the MRI…for Those Who Asked!

The MRI. I am getting some questions why I needed the MRI so I thought I would just post an update.

My spinal cord was injured because a virus attacked it. The virus caused swelling and the swelling damaged the spinal cord. My spinal cord was damaged at the C5-C7 vertebrae level. It was not severed by trauma like a bone or a bullet. It was damaged by swelling. Therefore, I am an incomplete injury. Some signals from my brain still get through to my body parts…some are great, some are weak, and some are extremely scrambled and confused.

I have always had a deficit in my arm strength (mostly my triceps) and would only have more trouble in my fingers when I was really tired, but overall I had good movement. If I had been a complete injury, I would have had very limited arm movement and no hand function at all. So, from my shoulders down, my muscles were weaker, but I was totally able to overcompensate weaker muscles with my stronger ones.

For 9 years now, I have tried extremely hard to not only be independent, but to learn every possible wheelchair skill I could. I have taken much pride in “doing it all by myself.” I wanted to work hard to be healthy and strong for my long-term health! I have always enjoyed being active and have enjoyed finding new activities from my wheelchair.

But…it is possible I just may have overdone it.

The past year…really well over a year now…I have had a lot of issues. My pain levels have been much higher, my spasms have been much more intense and more often, my fatigue was overwhelming and I have had much more trouble with my hands and arms…especially my left side. I am able to move but I am not able to do much with any sort of weight or resistance. I was doing adapted cross-fit at one time, I loved weight lifting…and honestly, I really struggle with just light therapy bands right now and even getting 3 pound weights over my head. It has been really frustrating!!

I am thankful for a good neurologist, a physical therapist who has expertise in seating systems, a neurological physical therapist who is working with me every week, and a personal friend who was a spinal cord rehab doctor before he retired. Together, everyone has come to the same conclusion…they think that I have overused my weaker muscles all these years and they have just sputtered out from being overworked. Bummer. I am still an incomplete. I am just much less incomplete. I still have much function to be thankful for!

In rare cases (about 2%), people with spinal cord injuries can develop a cyst or syrinx in their spinal cords in the area of the original damage that can cause loss of function over time. So, my neurologist just wants to make sure that is not what is going on and that is the reason for the MRI’s on my cervical and thoracic spine. He does not expect to find any problems, but to be safe, he wants to rule out the cyst or syrinx.

Things that have helped me function better lately….

 

 

 

In conclusion, no matter what, I am going to be okay. When I start to get gripped with fear of my future, I remind myself of the truth of God’s Word and how He already has my days planned and that He doesn’t allow anything to come into my life that He has not carefully decided would be for my good. I can trust Him.

Sometimes, the struggles of a disability can be pretty lonely and it truly encourages my heart to be prayed for and so I truly appreciate your prayers for me and your love and care. It truly helps to know that my friends care enough to pray for me. Thank you!!

 

 

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