The Journey of Grief
I was awakened this morning praying for friends who are walking through valleys of grief right now. Grief is one of those subjects that is hard to describe and talk about because it is so deeply felt and experienced. Some feelings and experiences are too difficult to...Paralyzed 13 Years Today…
13 is supposed to be an unlucky number…but today, on this 13th anniversary of becoming paralyzed…I feel so very blessed. 13 years ago today, I had been out of it for over 24 hours. When I was finally awaken…I wasn’t in horrific pain like I had been some 30 hours...SCI Awareness – Upper Motor Neuron vs. Lower Motor Neuron Injuries
Once you have a SCI, it is easy to know that your lungs, or arms and legs are weaker. But there is much more going on in your body that you must learn. The brain stops at the top of your neck and your spinalcord is the pathway for every single message that is sent...SCI Awareness – Your Classification
When your spinal cord is injured, you get classified: Is it a traumatic (car wreck, fall, gunshot, etc) or non-traumatic (tumors, illness, blood clots, etc). They have to know this to proceed with treatment to stabilize and minimize damage.What level are you damaged...September is Spinal Cord Injury Awareness Month
Why is awareness necessary? It is NOT because I need you to understand my life and all it’s stuff…although that may happen.It is NOT because anyone is seeking pity or “wow, your life is so hard I would just want to die!!” No, eventually, you would not want to die. 🙂It...Let’s Talk About Independence…and Assistance
Recently, a conversation was had in a disability Facebook group, about the trade off between receiving personal care assistance vs. losing personal independence. Specifically, “if you choose to get personal care to help you, when you can actually do it yourself...
The Pain Study
I recently posted on Facebook that I had been chosen for a research study from the University of Washington to deal with chronic central nerve pain for those who are employed. Central nerve pain (or neuropathic pain) is caused by damage to the central nervous system,...12 Years Paralyzed…
I remember in the early days, I would sob thinking there was NO way I could live like this for another year…let alone the rest of my life. My doctor had me go to the license bureau for a handicap tag for my car and the lady stamped a 5 year renewal stamp on it...My Sweet Children
This crew…they truly are the main reason I get out of bed each day. They inspire me, correct me, challenge me, encourage me and love me. They are fiercely protective of me and yet I can get on their last nerve. They laugh with me, and they laugh at me. They think I am...A Little About Me
In March of 2009, while expecting my 6th baby, I contracted Transverse Myelitis - a rare illness that left me paralyzed from my chest down. It has changed my life in many horrible and wonderful ways. I love to talk about it all. The good, the bad and the ugly.
It is always raw and real around here as I share my work in advocacy and accessibility, my heart for the spiritual lessons learned, music that speaks my soul, work and ideas that keep my family fed and my love for my precious blessings.
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